Together we are stronger.

/ Myalgic Encephalomyelitis / By

 

I have a big mouth, I have always be able to speak my mind & voice my opinions.

Since I was diagnosed with ME that has stopped in a lot of ways but I’m going to start shouting a lot !!! I’m going to be shouting about making a difference to the lives of others.

I have set up a website

http://alishawhittam.com/

It will tell my story , our stories and the challenges we face every single day . It will tell about ways this illness destroys lives , it will raise awareness. I will quash rumours about the lies people are told . I will show you what help is available from Occupational help to a comfy pillow and where to buy it.

I will ask questions to specialists all over the world.

It will keep you updated about news and trials that are happening.

It will share as much about ME help groups and social sites that might be beneficial to you.

It will let you know about charity events happening near you .

I want to start up #spooniesquad it will be a movement . Something positive to come about in all of this negativity. I want to design some #spooniesquad merchandise for us .

Things like pillows, cups with lids, pyjamas , hoodies , soft blankets , bags to help with the million things we need when we leave the house , disability aids . I will start to approach companies to offer us a #spooniesquad discount. I will set us up a shop on the website so we can get everything in one place and be confident that the price will be the best and the item the best quality.

I wil try things and give my honest opinion . I already have a few product reviews that I need to write.

Ok honesty time …….. I will be totally honest with you , I want to start vlogging but I am so ashamed of how I look ( yes my problem , I know ) but over the next few weeks I am going to do it. I’m going to face my fears.

The world isn’t going to be able to ignore us anymore.

Together we are stronger , we really are x 

I really do have a million and one things going around my brain and it hurts , I can’t switch off !! 

I know that I can make a positive change to people all over the world but it has to start somewhere.

I have even put a message board on the website where we can talk without people listening in , no more being afraid to speak honestly or being worried about offending friends or family.

Here are links to all my socials 

Facebook

https://www.facebook.com/alishawhittam

Twitter @alishawhittam

Pinterest 

https://uk.pinterest.com/alishawhittam/

Tumblr

https://whitts.tumblr.com/post/164371469695/25-posts

 

I need your help to share the website .

The more people it reaches the better because personally I know how lonely & isolated you can feel , I don’t want another person to feel the way I have felt.

Help me make a difference, please x x 

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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