Today’s the day my hair goes 😳
Having such Severe ME means that I can’t do so many things and if I am totally honest it upsets me a lot.
Having such long thick hair was difficult to manage when I was fit and well now it’s just a nightmare .
I can’t brush it as to raise my arms it really hurts , my arms are so bad that even eating a bowl of cereal leaves me in tears .
No more negativity I am going to look at this with a positive attitude.
I chose to cut all of my hair off and allow people to sponsor it so that I can raise money & awareness of ME .
ME sufferers across the world have problems doing so many things that most people take for granted.
I am trying so hard to try and get more independent, so if I have short hair then I don’t need to get my daughter to brush it or braid it for me .
That’s a win in a way 🎉🎉🥳🥳🥳
If I can’t brush or style my hair I started looking for a way of someone else being able to and that’s when I found The Little Princess Trust . The Little Princess Trust takes hair like mine and has it made into a wig for a young person with cancer.
So I ask all of you to help make today really positive.
I am asking for people to donate to Friends with ME which is a group I started on FB when I was at a real bad point in my ME Journey .
This group has helped turned my life around.
This ME Awareness week we will again be joining in with ME Sufferers around the world for the Millions Missing Campaign.
Running a day like this isn’t cheap as we have to have posters , banners , tags for shoes etc etc .
Last year we split the cost between a few of us .
This year I am asking people to donate to our campaign.
Any money left after the campaign will help ME Sufferers in our area.
🔶We have big plans for our group the first being monthly meetings .
🔶We want to plan days out for ME Sufferers and their families.
🔶We want to be able to have a pot of money available for when our government lets ME Sufferers slip through the cracks .
🔶We want to organise a Christmas party for ME Sufferers and their families.
🔶In the near future we want to be able to fund or partly fund research that we believe in .
🔶We want to be able to educate medical & health professionals about ME . It is shocking the amount of times we go to hospital or GP and we get asked what is ME ! It’s 2019 this needs to stop 🛑
🔶We want to be able to help young ME sufferers in our area find tutors to help keep up with school work when they experience a relapse and can not make it into school.
🔶If our government or health sector feels that our current ME Service is sufficient then we need to look at funding a better service ourselves.
🔶Our ideas go on and on .
🔶Most importantly never once since I was diagnosed with ME have I been asked “What would help you ?”
We want to ask the question and we want to give a voice to ME Sufferers who have been shushed for so long .
Yes all of this is ambitious but no one else is going to do this for us .
Our first priority is our local ME community but we don’t want to stop there .
ME Sufferers across the world held positions of importance before ME , the skills and experience our ME community has should not be dismissed.
I know that we can make a difference because we know what we want to change.
So please if you can donate to us we really do appreciate it .
If you can’t donate then help us by sharing this post , let’s get people talking about ME .
Help us make a real difference for ME Sufferers of Merseyside and surrounding areas.
All decisions about how funding is allocated will be done by our admin team.
Together we can make a difference x
