The ME Pyjama Party

Join in with The ME Pyjama Party and Raise Awareness for Myalgic Encephalomyelitis!

Hello everyone,

I’m thrilled to invite you to a special event that aims to make a significant impact in the lives of those living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS). Today, Friday, May 17th, 2024, we are hosting the ME Pyjama Party to raise awareness and support for the ME community. And guess what? Participating is as easy as putting on your comfiest pyjamas!

How to Participate

All you need to do to join the ME Pyjama Party is:

  1. Put on your PJs: It doesn’t matter what colour or if you have had them on all week , it’s time the world gets to see the real face of ME.
  2. Take a picture: Snap a photo of yourself in your PJs.
  3. Post on social media: Share your picture on your favorite social media platforms using the hashtag #MEPJParty.

Why Your Participation Matters

Every voice counts, and every action matters. By joining us and sharing your PJ pics, you are helping to shed light on the daily challenges faced by those living with ME/CFS. This condition is often misunderstood and under-recognized, leading to a lack of adequate support and research funding. Your participation can help change that.

The Impact of Awareness

Raising awareness about ME/CFS is crucial for several reasons:

  • Increased Understanding: Greater awareness leads to better understanding and empathy from the public, which can reduce the stigma associated with the condition.
  • Advocacy for Research: Highlighting the challenges of ME/CFS can push for more funding and research into treatments and potentially a cure.
  • Support and Solidarity: Seeing a community rallying together can provide immense emotional support to those affected by ME/CFS, showing them they are not alone in their battle.

Join Our Event Page

Stay connected and see how others are participating by joining our event page on Facebook: ME Pyjama Party Event. Here, you can share your photos, engage with others, and learn more about ME/CFS.

Spread the Word

Let’s create a ripple of awareness that can lead to real change. Encourage your friends, family, and followers to join the ME Pyjama Party. The more people we reach, the greater our impact will be. Use and follow the hashtags: #MEPJParty, #MECFS, #MyalgicEncephalomyelitis, #CFS to see all the amazing contributions and to keep the conversation going.

Thank You for Your Support

Your support means the world to the ME community. Together, we can advocate for greater understanding, more research, and better support systems for those living with this debilitating condition. Let’s unite in our pyjamas and show that we care.

Thank you for being a part of this important cause. I can’t wait to see all of your wonderful PJ pics!

Warm regards,

Alisha 💙

Picture of Alisha

Alisha

Proud Wife, Mother and Nanna . We married 19 years ago in Rome, Italy surrounded by our friends and family. We have the most beautiful, caring, considerate daughter, she makes us proud every single day. I am nan to Alfie, our Black Labrador and he is my best friend in all the world, I love how he understands that just laying next to me is all I need on a bad day and on a good day well it is cuddles and kisses galore. Liverpool born & bred, I never had enough guts to ever move away. Maybe it’s on my cards in the future. I have an illness that has destroyed my life, that illness has led me to blog my life with no filter. I put everything into raising awareness of Myalgic Encephalomyelitis and I would do anything to make sure no one else has to feel the way that I do. We have fun in our little home and I do anything to make my family happy. Love meeting new people over the web and hearing their stories. I Love making new friends and just trying to make a difference in this world.
Facebook X-twitter Youtube Instagram Tiktok Pinterest
Click to shop my Amazon Storefront
A Disney-style cartoon illustration of a dark-haired woman with blue eyes sitting on a bed, writing in a notebook. She is surrounded by a laptop, scattered notes, and a microphone. Two black Labradors, one with a red collar, sit beside her, while a camera records the scene
Visit my YouTube Channel

More Blog Posts

A woman sitting curled up, overwhelmed and exhausted, representing the silent battle of living with Myalgic Encephalomyelitis (ME).

Living with Myalgic Encephalomyelitis: The Battle No One Sees

Living with ME means fighting a silent, daily battle. This honest post explores the emotional, physical, and invisible toll of Myalgic Encephalomyelitis.
Read more
Futuristic robotic wheelchair in a high-tech medical facility, surrounded by digital interfaces and glowing blue indicators. Designed with advanced wheels and armrests, the chair is positioned under a floating holographic globe labelled "AI".

The Future of Accessibility: A Look Inside the Robotic Wheelchair Market

Robotic wheelchairs are transforming mobility for people with disabilities, offering smart technology, AI navigation, and new levels of independence. But the high cost keeps many from accessing these life-changing devices. This post explores both the promise and the barriers — and why we need to make this tech more accessible.
Read more
Illustrated image of a smiling green bookworm wearing glasses and a graduation cap, sitting on colourful books. Text reads: “Book Recommendations for People with ME/CFS, Endometriosis, Chronic Illnesses & More.”

Book Recommendations for People with Myalgic Encephalomyelitis (ME/CFS)

Looking for books that support, empower, and inform life with Myalgic Encephalomyelitis (ME/CFS)? Discover my top recommendations — from medical guides and personal memoirs to mental health must-reads. These titles helped me advocate for myself, understand my symptoms, and feel less alone. A must-read list for anyone navigating chronic illness.
Read more
Alisha rests her head with eyes closed next to a display of Kitsch haircare and beauty products, including claw clips, satin scrunchies, and packaging. Overlay text reads “/kit-sch/ Haul” in playful fonts.

KITSCH Unboxing | Self-Care, Sleep & Haircare Tips for Chronic Illness

Join me as I unbox a gorgeous PR package from Kitsch, featuring haircare and self-care essentials perfect for life with chronic illness. From satin pillowcases to the holy grail claw clip for thick hair, I share honest thoughts on how each item supports my daily routine living with Myalgic Encephalomyelitis. This heartfelt video blends unboxing, ASMR, and a behind-the-scenes look at my life as a disabled content creator.
Read more
Illustration of a woman sitting cross-legged on a cushion, holding a warm cup of tea with a relaxed expression, accompanied by the text: “Could a Cuppa Tea help with your pain symptoms?”

Could Tea Help Your Pain Symptoms?

Could something as simple as a cup of tea offer relief from chronic pain? In this post, we explore the research-backed benefits of peppermint and other herbal teas in managing symptoms of Myalgic Encephalomyelitis, Endometriosis, IBS, and more. Discover which teas help, how they work, and the traditional wisdom behind these natural remedies — plus a few personal stories and favourites along the way.
Read more
Illustration showing mitochondria with expressions and a woman in bed with a low battery icon, representing energy depletion in ME/CFS. Designed for a blog post about Dr Paul Hwang’s research on mitochondrial dysfunction in Myalgic Encephalomyelitis.

Dr Paul Hwang and ME/CFS: A Glimmer of Hope in the Research World

Dr Paul Hwang's latest ME/CFS research offers new hope for those living with chronic fatigue. Discover how his unexpected findings on mitochondria and the WASF3 protein could reshape our understanding of energy production in Myalgic Encephalomyelitis—and why this matters for millions still waiting to be heard.
Read more

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

Get Updates In Your Inbox !

Sign up with email to receive news & updates.

Menu

Latest Blogs

Important