Sinking

I always said that I would write down how I feel and right now I feel like I’m sinking.

Quarantine has been so hard for everyone the world over and for many of you right now you will be seeing light at the end of the tunnel. For people like me this is my life day in day out and it’s never going to stop.

I don’t get a happy ending , I just get to sit here in my bed unable to do anything and feel absolutely worthless . I can’t be a Wife or Mother and every day I wonder what the point is.

Everything I want to do I can’t or need help with and asking for help makes me feel even worse 😢

Picture of Alisha

Alisha

Proud Wife, Mother and Nanna . We married 19 years ago in Rome, Italy surrounded by our friends and family. We have the most beautiful, caring, considerate daughter, she makes us proud every single day. I am nan to Alfie, our Black Labrador and he is my best friend in all the world, I love how he understands that just laying next to me is all I need on a bad day and on a good day well it is cuddles and kisses galore. Liverpool born & bred, I never had enough guts to ever move away. Maybe it’s on my cards in the future. I have an illness that has destroyed my life, that illness has led me to blog my life with no filter. I put everything into raising awareness of Myalgic Encephalomyelitis and I would do anything to make sure no one else has to feel the way that I do. We have fun in our little home and I do anything to make my family happy. Love meeting new people over the web and hearing their stories. I Love making new friends and just trying to make a difference in this world.
Facebook X-twitter Youtube Instagram Tiktok Pinterest
Click to shop my Amazon Storefront
A Disney-style cartoon illustration of a dark-haired woman with blue eyes sitting on a bed, writing in a notebook. She is surrounded by a laptop, scattered notes, and a microphone. Two black Labradors, one with a red collar, sit beside her, while a camera records the scene
Visit my YouTube Channel

More Blog Posts

Collage-style graphic featuring Taylor Swift at The Eras Tour in Anfield, Liverpool on Friday 14th June 2024. Includes a large black-and-white portrait of Taylor, colourful stage visuals, and photos of Taylor performing in a red sequinned outfit and a blue flowing gown.

Taylor Swift The Eras Tour at Anfield

The sight of the bustling crowds heading towards that beautiful fortress of a football stadium fills me with immense pride as a Scouser. The Scouse girls, as always, looked absolutely stunning, but their allure seemed to reach ethereal levels for the Taylor Swift concert.
Read more
A mother and daughter smiling together at Anfield Stadium on the night of a Taylor Swift concert, capturing a joyful and unforgettable experience

Anfield from a Wheelchair: A Disabled Supporter’s Guide to Liverpool FC’s Accessibility

Anfield is one of the most iconic stadiums in the world, but how accessible is it for disabled supporters? As a lifelong LFC fan, I recently attended an event at Anfield in a wheelchair—here’s everything you need to know about their accessibility services, ticketing, and top tips for an inclusive experience! Read the full guide to make the most of your visit and ensure a smooth experience at this legendary stadium. ⚽💙 #AccessibleAnfield #YNWA #DisabilityInSport
Read more
Collage image featuring assistive tools and gadgets including a shower stool, Philips Hue lights, jar opener, Stanley Cup, Ring doorbell, iPad, Biotène mouthwash, and Fullstar chopper, with text reading “My Amazon Favourites – ME/CFS Edition”.

My Chronic Illness Essentials: The Tools That Help Me Live Life with ME/CFS

Living with ME/CFS means every bit of energy counts. In this post, I’m sharing the Amazon finds that help me manage daily symptoms, conserve spoons, and stay as independent as possible—from smart tech to mobility aids and comfort tools that truly make life a little easier. Let me know if you’d like a more playful, SEO-rich, or community-style version too! 💛
Read more
Illustration of a woman surrounded by bright light and energy lines, representing the pain and overwhelm of ME/CFS. Text overlay reads: "The Tools That Help Me Live My Life with ME/CFS."

What ME/CFS Really Feels Like – And What Gets Me Through It

This blog shares my lived experience with ME/CFS flares—from symptoms like pain and cognitive fog to tools, medications, and routines that help me cope.
Read more
Illustration of a dentist and magical tooth character with the words “Domiciliary Dental Care” – representing domiciliary dental care in Liverpool.

Finding Dignity in Dental Care: My Experience with Domiciliary Dentistry in Liverpool

Struggling to access a dentist due to chronic illness or disability? Learn how domiciliary dental care changed everything for me in Liverpool.
Read more
Illustration of a smiling man holding a large blue National Disability Card against a pink background with text promoting the card as a discreet and effective way to communicate disability.

National Disability Card UK: A Lifeline for People with Disabilities

The National Disability Card is more than just ID—it’s a powerful tool for people with visible and invisible disabilities to access support, travel more freely, and live with greater confidence. From emergency contact features to priority access at venues like Disneyland Paris, this card helps ensure you're seen, understood, and supported without needing to explain your condition time and time again.
Read more

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

Get Updates In Your Inbox !

Sign up with email to receive news & updates.

Menu

Latest Blogs

Important