Not so Ordinary

/ Myalgic Encephalomyelitis / By

I have to confess that I am addicted to Tik Tok , it has even made me buy things, things like The Ordinary Peeling solution.

I will admit that I don’t do a lot with my skin, I’m not one for face masks or treatment so when this first launched I wasn’t counting down the days. Yet it kept on popping up on my Tik Tok for you page. With my Daughter being home because of the Coronavirus I thought why not, I’m due a pamper day. So I ordered it on my amazon of course, it’s now one of the only places I shop.

So we made today Pamper day , I was determined to have my hair dyed in the first time in over a year, as I really needed to cover up the grey hair. If I had enough energy left I was doing to do the face mask.

Being completely bedridden I do rely on others to do everything for me and I feel guilty enough asking for help as it is , so I don’t like to push my luck. Today wasn’t too bad a pain day so with Becks help I was able to get the dye on my hair. Just looking in the mirror and not seeing the grey made such a difference to how I feel. I know that I shouldn’t let things like that dictate how I feel but it really does, being 42 completely bedridden with more grey hair than brown really did affect how I felt.

Today I felt more like me than I have in a very long time , it must have done I have been posting pictures to my social media pages of me for a change, normally it’s always the dog.

So The Ordinary peeling solution, I have to admit that the colour is scary. The instructions say to keep it away from your eyes and apply it using your fingertips. It went on so easy, so with a timer set for 10 minutes I had some Tik Tok time. I’m absolutely ADDICTED, I would hate to see my screen time. Ten minutes up so I filled the basin with lukewarm water and then added a little water to dilute what was already on my face , with just a few splashes of water it was all gone. I did have a black towel ready just in case.

Just seeing and feeling more like me has made such a difference and yes I will honestly say that I am really starting to feel it now. It’s ridiculous how Myalgic Encephalomyelitis can drain my body so easily.

My skin feels great , it feels soft and the large pores which are the bain of my life have shrunk too. I’m well happy.

Tonight we have a date night , well our version of date night. We have ordered from our favourite restaurant , lights are low and of course the dog is lay at the end of the bed. You didn’t think I was able to get up did you, I feel good not able to perform miracles. We have The Platform to watch and food coming from The Arong . Bliss

I have included a link below for you to get your own using my Amazon Affiliate Link.

Give it a try and let me know what you think 🤔

Love and hugs,

Alisha x x x

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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