Myalgic Encephalomyelitis Sufferers Liverpool

/ Medical Research, Myalgic Encephalomyelitis / By
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Attention Myalgic Encephalomyelitis (ME) Sufferers in Liverpool and Surrounding Areas: Your Voice is Needed!

Are you living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (Myalgic Encephalomyelitis)? Are you a Myalgic Encephalomyelitis Sufferer in Liverpool?

Your experience matters and your voice deserves to be heard!

I’m Alisha Whittam, a fellow ME/CFS sufferer, and I’m reaching out to connect with others in our community. I’m on a mission to gather crucial data and personal stories from ME sufferers in Liverpool and the surrounding areas.

Why is This Important?

By collecting and sharing our experiences, we can highlight the prevalence of ME/CFS in our region, advocate for improved resources, and build a stronger support network for all of us.

How You Can Help:

If you’re living with ME/CFS, I would be incredibly grateful if you could take a moment to share some information with me:

  • Confirmation of ME/CFS: Are you diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
  • Location: Where are you based? (Please share just your area to maintain privacy.)
  • Treatment Status: Are you currently receiving any treatment for ME/CFS?
  • Diagnostic Journey: Have you been officially diagnosed, or are you still awaiting a diagnosis?
  • Diagnosis Location: Where were you diagnosed?
How to Participate in the Survey:

Simply click here to email me with your responses. Rest assured, your personal information will remain confidential. Your input will be invaluable in driving change for the ME/CFS community in Liverpool and beyond.

Why Your Participation Matters:

This survey is a crucial step towards understanding the challenges we face, improving our quality of life, and ensuring that our voices are heard. Together, we can make 2024 a year of meaningful change for all ME sufferers in our area.

Your Story Can Make a Difference:

Your experience could be the key to unlocking better resources, stronger support, and greater awareness for ME/CFS in our community.

Thank you for considering taking part in this vital initiative. Together, we can make a difference.

 NB: This information is being collected by me, Alisha in the hope that we can better understand the number of local Myalgic Encephalomyelitis sufferers. 

I will keep this information confidential and will not share your personal details with anyone else. Upon receiving your email, I will print it out and store it as a physical copy in a folder.

I believe it’s important to determine how many of us are receiving treatment and who is providing care. If you are not receiving help, let’s find out why. Is there an issue with a specific doctor or primary care trust? Then, we can discuss what you as the patient need and how we can help.

This is just the beginning, and I hope that in the future we can take this to the next level.

Most importantly, it will help us determine if there is adequate funding for individuals affected.

I believe that as a community, we can make the difference that we so desperately need.

Thank you 

Love Always 

Alisha 🫶

 

Click here to send your information to Alisha

For more information about Myalgic Encephalomyelitis visit Myalgic Encephalomyelitis Symptoms

For information on where to get help visit Our Contact Page

📍 Connect with me : 

My website – https://alishawhittam.com/

YouTube – https://www.youtube.com/@AlishaWhittam

Follow my socials at :

Facebook – https://www.facebook.com/alishajwhittam 

Instagram – https://instagram.com/alishawhittam

Twitter – https://twitter.com/alishawhittam

Tik Tok – https://www.tiktok.com/@alishawhittam

Pinterest – https://www.pinterest.co.uk/alishawhittam

Business enquiries to – ask@alishawhittam.com 

 

Myalgic Encephalomyelitis Sufferers Liverpool please share this and help me make a difference 🫶

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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