Welcome to My Blog – My Name is Alisha and I am an Advocate | Blogger | and Influencer, I bring a unique perspective to the creator community as I navigate life predominantly from my bed due to Myalgic Encephalomyelitis, Endometriosis, Steatohepatitis, and De Quervains Syndrome affecting both hands.

My interactions with the outside world are limited to essential appointments, often necessitating ambulance trips to the hospital during severe bouts of pain.

I strongly believe in the power of my voice, representing the millions worldwide facing similar challenges. Those enduring the complexities of illnesses like Myalgic Encephalomyelitis, women grappling with Endometriosis, and individuals relying on wheelchairs and aids for daily living.

I aim to stand out by fostering genuine connections and collaborations.

Travelling with a Wheelchair

Travelling is one of life’s greatest joys, but for those of us who rely on wheelchairs, it can present unique challenges, particularly when venturing abroad. As a wheelchair user, I understand the anxiety that comes with entrusting your mobility device to an airline, knowing that if something goes wrong, your entire trip could be jeopardised. This blog post aims to offer practical advice and reassurance to fellow wheelchair users who dream of exploring the world, with tips on how to prepare for your journey, protect your wheelchair, and deal with any unfortunate incidents that may arise.

Health

Today’s the day of the haircut

Today’s the day my hair goes 😳 Having such Severe ME means that I can’t do so many things and if I am totally honest it upsets me a lot.  Having such long thick hair was difficult to manage when I was fit and well now it’s just a nightmare
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Disabled blogger

Hope

A life without hope. ******Advice***** If you live with someone with a Chronic illness of any type please don’t take away hope. We will experience good days and bad days but for us every day is difficult to get through. Being bedridden or having to change your life due to
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Health

I am having all of my hair cut off !!

I am having all of my hair cut off !!!! If you would, please share this as it includes our pages x x My hair will be donated to The Little Princess Trust so that they can make a wig for a child who has lost theirs due to Cancer
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Disabled blogger

Updates

Hi everyone, I just wanted to say Hi 👋. I am doing a few changes on my website at the moment , so please accept my apology that things are a little bit messy right now. Everything will be back to normal shortly x
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Health

Feel like I have lost it…

What do you do when you feel like you have lost it. I turned 41 this year and I know that I should be entering this more mature womanly stage yet I still feel like a 22 year old who hasn’t got a clue. I feel like a kid playing
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Myalgic Encephalomyelitis

So Disappointed

It’s been weeks in the making. The day has appeared close only for a down turn which moved this day further away. That’s what makes the disappointment so bad. What could possibly take that much planning, what was so big in my life that it has been rearranged, put off
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Health

Lonely.

It’s a dark rainy morning as I peak outside. Graham is in the shower getting ready to go to work, he always gives me a cuddle before he leaves for work and some days we even manage to talk for a little bit. A permanent companion as always is cuddled
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Health

Hyperhidrosis

Does anyone else suffer with Hyperhidrosis ? In case you haven’t heard of it , Hyperhidrosis is excessive sweating . Your whole body can be affected or just certain areas. It’s not sweating from excessive exercise most of the time you sweat for no reason. It can be a side
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Description of the most common ME symptoms.
Health

Tough

It’s been a tough few months and I am trying my hardest to get back to some sort of normality but I will be honest, right now ME is kicking my butt! There are so many things that I want to do , not things for me but things that
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Myalgic Encephalomyelitis

Park Foot

Several years back we bought a tent to allow us to go camping as a family. Over the past few years we have found a few sites we will go back to and one of them is Park Foot In Ullswater. With Graham starting his new job this week I
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Health

Raising Awareness

This year my main focus was to raise awareness of ME and to make a difference. I can proudly say that this ME Awareness week absolutely floored me. Yes it sounds silly but I am proud that I put so much into something that months later I am still a
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Myalgic Encephalomyelitis

Together we can make a difference.

I think I need to clarify my position on what I want to achieve by meeting with Dr Beadsworth and the team at Broadgreen. I believe that the amount of time and tests that we have to go through in order to be diagnosed with ME should be the all
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Disabled blogger

Parliament

This could make a huge difference to ME Sufferers, so please help in any way you can . I ask every single one of you to read this, please . A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30pm. The
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Myalgic Encephalomyelitis

Open letter to our local MPs

I have Severe ME which has destroyed not only my life but the life of my Husband & Daughter too. ME affects roughly 17million people around the world yet we have no cure. We have a support group in Liverpool called Friends with ME , as a group we want
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Picture showing a stick figure with flowers saying It’s Hurting again .
Myalgic Encephalomyelitis

Support

This keeps me awake at night so I’m just going to say it . I feel like I have no support. Dont get me wrong , I know I have support from my immediate family and a few friends . Yet why don’t I hear from anyone else?   If
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Myalgic Encephalomyelitis

Pet Head Oatmeal Shampoo 🐶

  Oh yeah , I am going to review as many things as I possibly can. Some will say that this is stupid , I feel that my best friend deserves to be pampered and ok I do take it to the extreme some times but his coat absolutely has
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What’s in my Hospital Bag | Disabled & Organised | Managing Myalgic Encephalomyelitis ME/CFS
Health

Whats in my Bag?

I have finally done it! I have finally uploaded my first video to YouTube! Welcome to my life, we are starting off with a Whats in my bag video. I hope you love it 🫶
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Myalgic Encephalomyelitis

ME PJ Party – Joules

    Description  Pyjama Review. I finally managed to take a shower last night and get into fresh PJs , I really don’t get why this excites me so much 🤗 So about 7pm last night i put on my new Joules pjs. Yes they are from Joules and a
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HELP IS AVAILABLE

White Background with black text The ME Community

Friends with ME is a support network of people with ME or “Friends with ME” It is a group where we can talk openly to people who understand how we feel. It’s also for carers and family members of people with ME who also need support. This group will very shortly be running support groups in Liverpool, I am aiming to have regular group meetings up and running in 2024. Most importantly between us, we can do anything.

Talk with ME is a page to share information about ME Talk with ME is here to support Our Family, Friends and Carers as we understand that this illness directly affects the people closest to us. Talk with ME is a safe place, we do not allow bullying or spam comments. Any member can send a message directly to me if they are uncomfortable and I will personally investigate before taking action.

Myalgic Encephalomyelitis Carer Community is here to allow people who care for Myalgic Encephalomyelitis sufferers to talk privately. It is no secret that life with Myalgic Encephalomyelitis is extremely difficult yet the people who care for ME sufferers are often forgotten about. Alisha wanted this page to be a place where the carers and families could talk privately, a place where we could ask each other for help and support or advice. This group is managed by Alishas Daughter who also works full time so if you do have any questions and you need help please message us and we will come back to you as soon as we are able to.