My Blog

Welcome to My Blog – My Name is Alisha and I am an Advocate | Blogger | and Influencer, I bring a unique perspective to the creator community as I navigate life predominantly from my bed due to Myalgic Encephalomyelitis, Endometriosis, Steatohepatitis, and De Quervains Syndrome affecting both hands.

My interactions with the outside world are limited to essential appointments, often necessitating ambulance trips to the hospital during severe bouts of pain.

I strongly believe in the power of my voice, representing the millions worldwide facing similar challenges. Those enduring the complexities of illnesses like Myalgic Encephalomyelitis, women grappling with Endometriosis, and individuals relying on wheelchairs and aids for daily living.

I aim to stand out by fostering genuine connections and collaborations.

Featured Article

Travelling Abroad with a Wheelchair

Travelling with a Wheelchair

Travelling is one of life’s greatest joys, but for those of us who rely on wheelchairs, it can present unique challenges, particularly when venturing abroad. As a wheelchair user, I understand the anxiety that comes with entrusting your mobility device to an airline, knowing that if something goes wrong, your entire trip could be jeopardised. This blog post aims to offer practical advice and reassurance to fellow wheelchair users who dream of exploring the world, with tips on how to prepare for your journey, protect your wheelchair, and deal with any unfortunate incidents that may arise.

YouTube Channel launch to highlight Severe ME

November 6, 2017 No Comments

I have Severe ME and I am launching my own YouTube channel to show people just what it is like to live with a Chronic Illness. I am so nervous about this but as I always say “What doesn’t kill you makes you stronger” It is all set up .

Myalgic Encephalomyelitis

Hospital again ….

October 25, 2017 No Comments

I have been very quiet recently and there is a reason , honestly I think this illness is getting worse a lot worse. Over the last few months the exhaustion has just been so much more it is really scary . I have been having paralysis of arms or legs

Myalgic Encephalomyelitis

Help me make a difference.

September 28, 2017 No Comments

Open letter to companies and brands . If you work somewhere or are related to someone who could help me then please forward this email to them . I need this to be shared and for ME to get the attention it deserves for all the right reasons . We

Myalgic Encephalomyelitis

Alfie’s first bath 🐶

August 25, 2017 No Comments

Good evening everyone x This little scamp is a huge part of our family and he makes us laugh every single day . If he can make us laugh with all the crap that goes on here everyday then he must be hilarious to other people . Even if he

Myalgic Encephalomyelitis

Alfie at 8/9 weeks old 🐶

August 22, 2017 No Comments

Myalgic Encephalomyelitis

Contact

August 20, 2017 No Comments

Get in touch If you want to email me directly it’s alisha@alishawhittam.com Sales enquiries sales@alishawhittam.com Marketing enquiries marketing@alishawhittam.com Press enquiries press@alishawhittam.com If you are young carer and need someone to talk to who understands then you can message my young carer . Rebecca is my rock , she

Myalgic Encephalomyelitis

I challenge you …..

August 20, 2017 No Comments

Welcome to every single one of you and I thank you all so much for the positivity that you have left me in the last day x I can’t put into words how much it upsets me and drives me on . It upsets me because I wish that no

Myalgic Encephalomyelitis

Together we are stronger.

August 19, 2017 No Comments

I have a big mouth, I have always be able to speak my mind & voice my opinions. Since I was diagnosed with ME that has stopped in a lot of ways but I’m going to start shouting a lot !!! I’m going to be shouting about making a

Myalgic Encephalomyelitis

Sound a little crazy , bear with me .

August 18, 2017 No Comments

I am passionate about making a difference in our community. I am using every single ounce of what I have to make a difference, it’s 2017 . We should not have a whole section of society left to get on with it as best they can. We should have people

Myalgic Encephalomyelitis

#spooniesquad

August 18, 2017 No Comments

Like & share using #spooniesquad I definately think it could become our community identity. Im thinking cups, pens, tshirts, bags , hoodies . Let me know what you think x

Myalgic Encephalomyelitis

Charity work is so important to me.

August 15, 2017 No Comments

Why this is so important to me . The first time I really got involved with raising money for charity I was 10 or 11 maybe . We were doing a sponsored swim to raise money for Alder hey hospital , we were raising the money in the name of

Myalgic Encephalomyelitis

Things that have made a difference in my life.

August 15, 2017 No Comments

Help ME Today I thought I would introduce to people who are unaware of the help I need just to get through a day, hopefully this will also help other sufferers by introducing you to the items that are available to make things easier for us . Occupational Health This

Myalgic Encephalomyelitis

I hate bullying .

August 15, 2017 No Comments

You got a friend in me . I know cousins are your first lot of best friends . My first real best friend I met when we moved away from Liverpool. We were inseparable , I remember moving back to Liverpool and feeling like my arm had been cut off,

Myalgic Encephalomyelitis

Olly at Echo Arena Liverpool – May 2015

August 15, 2017 No Comments

Olly Murs at the Echo arena Liverpool Travel We travelled into town by car , we didn’t really hit traffic until we hit the strand. It was just a little slow moving as people turned into the Albert Dock and the car park at Liverpool One. Parking We parked at

Myalgic Encephalomyelitis

Be careful what you say.

August 15, 2017 No Comments

So low …. I tried to do something good this week . In trying to do good in the community I live in , I have never felt more of an outsider . As you know from my previous posts I try and get involved in as much fundraising as

Myalgic Encephalomyelitis

Socially Anxious

August 15, 2017 No Comments

From Jan 2016 Social Anxiety I fear criticism for writing this post , here goes anyway ….. Last night I attended a Fancy dress party for my Brother in Law , so a place filed with friends & family . All week I was not going to attend but I

Myalgic Encephalomyelitis

Sometimes life gets really hard!

August 15, 2017 No Comments

Tina Turner said it best . I don’t really want to fight no more . This is time for letting go … While she sings of love and heartbreak the very words speak of letting go really do shout out at me . If you have ME or Fibromyalgia or

Myalgic Encephalomyelitis

Living or existing ?

August 15, 2017 No Comments

Life or existing ? I lay in bed all day in absolute agony taking enough tablets to knock most people off their feet for a week … I take at : 7am 1 X Zomorph 30mg 1 X Zomorph 10 mg 1 X Fluoxetine 20mg 2 X Gabapentin 300mg 1

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HELP IS AVAILABLE

Friends with ME is a support network of people with ME or “Friends with ME” It is a group where we can talk openly to people who understand how we feel. It’s also for carers and family members of people with ME who also need support. This group will very shortly be running support groups in Liverpool, I am aiming to have regular group meetings up and running in 2024. Most importantly between us, we can do anything.

FRIENDS WITH ME

Talk with ME is a page to share information about ME Talk with ME is here to support Our Family, Friends and Carers as we understand that this illness directly affects the people closest to us. Talk with ME is a safe place, we do not allow bullying or spam comments. Any member can send a message directly to me if they are uncomfortable and I will personally investigate before taking action.

TALK WITH ME

Myalgic Encephalomyelitis Carer Community is here to allow people who care for Myalgic Encephalomyelitis sufferers to talk privately. It is no secret that life with Myalgic Encephalomyelitis is extremely difficult yet the people who care for ME sufferers are often forgotten about. Alisha wanted this page to be a place where the carers and families could talk privately, a place where we could ask each other for help and support or advice. This group is managed by Alishas Daughter who also works full time so if you do have any questions and you need help please message us and we will come back to you as soon as we are able to.

ME CARERS COMMUNITY

What is Myalgic Encephalomyelitis

What is Myalgic Encephalomyelitis ?

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

What are the symptoms of Myalgic Encephalomyelitis ?

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

Can be severe.
Is not a result of unusually difficult activity.
Is not relieved by sleep or rest.
Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

Muscle pain and aches
Joint pain without swelling or redness
Headaches, either new or worsening

Some people with ME/CFS may also have:

Tender lymph nodes in the neck or armpits
A sore throat that happens often
Digestive issues, like irritable bowel syndrome
Chills and night sweats
Allergies and sensitivities to foods, odors, chemicals, light, or noise
Muscle weakness
Shortness of breath
Irregular heartbeat

Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

What is the treatment for Myalgic Encephalomyelitis ?

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

What is Chronic Fatigue Syndrome ?

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis?

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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