Welcome to My Blog – My Name is Alisha and I am an Advocate | Blogger | and Influencer, I bring a unique perspective to the creator community as I navigate life predominantly from my bed due to Myalgic Encephalomyelitis, Endometriosis, Steatohepatitis, and De Quervains Syndrome affecting both hands.

My interactions with the outside world are limited to essential appointments, often necessitating ambulance trips to the hospital during severe bouts of pain.

I strongly believe in the power of my voice, representing the millions worldwide facing similar challenges. Those enduring the complexities of illnesses like Myalgic Encephalomyelitis, women grappling with Endometriosis, and individuals relying on wheelchairs and aids for daily living.

I aim to stand out by fostering genuine connections and collaborations.

Travelling with a Wheelchair

Travelling is one of life’s greatest joys, but for those of us who rely on wheelchairs, it can present unique challenges, particularly when venturing abroad. As a wheelchair user, I understand the anxiety that comes with entrusting your mobility device to an airline, knowing that if something goes wrong, your entire trip could be jeopardised. This blog post aims to offer practical advice and reassurance to fellow wheelchair users who dream of exploring the world, with tips on how to prepare for your journey, protect your wheelchair, and deal with any unfortunate incidents that may arise.

Matthew Street Festival is a music festival held over August Bank Holiday in Liverpool. Originally this festival was set up to honour the music of The Beatles and was held in Matthew Street. Now the event is held at The Pier Head. This Image features The Beatles Statue of all 4 Beatles and it can be found at The Pier Head
Disabled blogger

The Mathew Street Festival

Liverpool, a city synonymous with music, culture, and history, is home to one of the most iconic events that celebrates its rich musical heritage – the Mathew Street Festival. This annual (fingers crossed )event, deeply rooted in the city’s identity, has grown over the years to become a symbol of
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Complete Cable Management System
Disabled blogger

Cable Management System

Don't let cable chaos take over your space! Discover the ultimate guide to cable management and transform your home or workplace into a clutter-free oasis. Learn how to organise, protect, and optimise your cables with a comprehensive cable management kit. From cable sleeves that provide protection and aesthetic appeal, to
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My hand looking very swollen this picture was taken before the fire service cut my rings off
Health

I had to have my Engagement and Wedding rings cut off by the fire service

These aren’t just any rings—they hold so much sentimental value. My engagement ring for obvious reasons but my wedding ring was my Nan’s wedding ring, a cherished gift she gave us on the day we got engaged.  I had never took my rings off since the day of our wedding so
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Blue sky clear except for a few wispy clouds. The text reads Maeve Boothby-O’Neill
Myalgic Encephalomyelitis

A Tragic Loss: The Urgent Need for Change in the Care of ME Patients

It is with a heavy heart that I write this blog post today, reflecting on the tragic and untimely death of Maeve Boothby-O’Neill, a young woman from the Myalgic Encephalomyelitis (ME) community. Maeve’s life was cut short at just 27 years old, not by the disease alone, but by the
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Pink Square Background with a border of planes, sunglasses, passports,cameras and tickets.In the centre of the square is a dark haired lady sat in a wheelchair with bubble marks it says "Lets talk about travelling with a wheelchair"
Disabled blogger

Travelling Abroad with a Wheelchair: A Comprehensive Guide for Smooth and Safe Journeys

As a wheelchair user, I understand the anxiety that comes with entrusting your mobility device to an airline, knowing that if something goes wrong, your entire trip could be jeopardised.
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ME PJ Party frame to raise awareness for Severe ME DAY
Myalgic Encephalomyelitis

ME Pyjama Party for Severe ME Awareness Day 8th August 2024

Join the ME Pyjama Party and Raise Awareness for Myalgic Encephalomyelitis! Each year for ME Awareness Week in May and for Severe ME Day in August we wear PJs with the aim to make a significant impact in the lives of those living with Myalgic Encephalomyelitis (ME), also known as
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Alisha a wheelchair user with her daughter at Anfield
Disabled blogger

Anfield from a Wheelchair: An Inclusive Experience

Anfield's Accessibility Features Anfield Stadium is designed with accessibility in mind, boasting over 200 wheelchair bays on match days. This ensures that disabled fans can enjoy the game with the best possible view and comfort. Additionally, the stadium provides various other accessibility features to accommodate different needs:
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Amazon Prime Day
Product Review

Amazon Prime Day

In our house, every day is like Amazon Prime Day. This year I wanted to share some of my favourite items so you don't spend money on something that isn't worth it. So here are some of my favourite Amazon products -
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Disabled blogger

Taylor Swift The Eras Tour at Anfield

The sight of the bustling crowds heading towards that beautiful fortress of a football stadium fills me with immense pride as a Scouser. The Scouse girls, as always, looked absolutely stunning, but their allure seemed to reach ethereal levels for the Taylor Swift concert.
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The National Disablity Card
Disabled blogger

National Disability Card

The National Disability Card is designed to provide proof of disability, making it easier for individuals to access various services, benefits, and discounts. It is a recognition tool that helps reduce the need for individuals to repeatedly prove their disability.
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Disabled blogger

Accessibility and Inclusion: Making Pride Truly Welcoming for All

As Pride Month approaches each year, colourful displays of support, joy, and love for the LGBTQ+ community become widespread. However, within these celebrations, a notable portion of another community feels excluded and marginalised.
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Disabled blogger

Why We Need More Disabled MPs in the UK

With a general election campaign now in full swing, we should be asking why it is still so hard for disabled people to run for office and what the next government will do about it.
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Autoimmune Disease

The ME Pyjama Party

I'm thrilled to invite you to a special event that aims to make a significant impact in the lives of those living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
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Autoimmune Disease

Raising awareness of Myalgic Encephalomyelitis

We are all ready in Our Red PJs to help raise awareness of Myalgic Encephalomyelitis. To join us all you need to do is take a pic in your PJs and post it to social media using #MEPJParty
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ME PJ Party
Chronic Illness

ME PJ Party

Together, we can shed light on the challenges faced by those living with ME/CFS and advocate for greater understanding and support
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ME PJ PArty
Chronic Illness

Uniting for change: The ME Pyjama Party Movement

In the realm of chronic illnesses, Myalgic Encephalomyelitis (ME) stands as a formidable challenge, affecting millions worldwide. Despite the invisible nature of the illness, its impact is profound and pervasive, leaving many individuals bedridden and isolated. However, amidst the struggle, a beacon of hope shines bright: Our ME Pyjama Party.
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a classic Disney cartoon-style image of a woman with long dark brown hair and blue eyes lying in bed with a black Labrador puppy wearing a red collar
Myalgic Encephalomyelitis

The Invisible Struggle: Loneliness and Chronic Illness – Insights from a Myalgic Encephalomyelitis sufferer.

Living with a chronic health condition like Myalgic Encephalomyelitis (ME) can be an isolating experience, often leaving individuals feeling unseen and unheard. The invisible nature of ME compounds the already challenging journey, leading to profound feelings of loneliness and isolation
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A woman in a wheelchair with the Eiffel Tower in the distant foreground with text over which reads Happy International Wheelchair Day
Disabled blogger

Happy International Wheelchair Day

Happy International Wheelchair Day! Today, we celebrate the incredible resilience, strength, and freedom that wheelchairs bring to millions around the world.
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HELP IS AVAILABLE

White Background with black text The ME Community

Friends with ME is a support network of people with ME or “Friends with ME” It is a group where we can talk openly to people who understand how we feel. It’s also for carers and family members of people with ME who also need support. This group will very shortly be running support groups in Liverpool, I am aiming to have regular group meetings up and running in 2024. Most importantly between us, we can do anything.

Talk with ME is a page to share information about ME Talk with ME is here to support Our Family, Friends and Carers as we understand that this illness directly affects the people closest to us. Talk with ME is a safe place, we do not allow bullying or spam comments. Any member can send a message directly to me if they are uncomfortable and I will personally investigate before taking action.

Myalgic Encephalomyelitis Carer Community is here to allow people who care for Myalgic Encephalomyelitis sufferers to talk privately. It is no secret that life with Myalgic Encephalomyelitis is extremely difficult yet the people who care for ME sufferers are often forgotten about. Alisha wanted this page to be a place where the carers and families could talk privately, a place where we could ask each other for help and support or advice. This group is managed by Alishas Daughter who also works full time so if you do have any questions and you need help please message us and we will come back to you as soon as we are able to.