Happy Birthday

/ Myalgic Encephalomyelitis / By

It’s my Happy Birthday on 31st May 🎉🥳
So I’m going to be incredibly cheeky 😉
I don’t want any cards or gifts.
Instead I want you to take the money that you would have spent on cards, postage, flowers, gifts, trips to Rome 🤣🤣
I want you to donate that money to An Hour For Others , they are a charity based here in Liverpool.

If you haven’t had the pleasure of meeting Kevin and Gill then you are missing out.
What they do inspires me to be a better person , they make a difference to people who really need help and they do this in Liverpool

ME is awful and its not just hard on me.
My Husband still has to go to work even if he has been at the hospital with me till early hours of the morning or if I have spent the night in tears because the pain is too bad.
Our Daughter was in school when I was diagnosed and the less I was able to do , the more she did. She knew how to manage a home when she was 13 , she helps me dress, wash , she gets me clothes ready , she even makes dinner.
She was even doing this when she was doing her GCSEs.

Knowing my story Kevin messaged one day to tell me that he had tickets for them to go the match together , he wanted them to have a break because he knows how important the family unit is to someone who is ill. He knew how much they needed just that one night away to have fun.

Right now they are doing everything they can to get food and anything else that people in our communities need.
Go and look at their FB and look for yourselves https://www.facebook.com/anhourforothers/

Please give anything you can because making a difference to people who really need it , well that would be the best gift you could ever give me 💝

https://www.gofundme.com/f/an-hour-for-others-community-fund-during-covid19?utm_source=customer&utm_medium=copy_link-tip&utm_campaign=p_cp+share-sheet

Please 😘

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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