Millions Missing St George’s Hall , Liverpool

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We are the Millions Missing and we need your help.

This ME Awareness week we will be holding our action on Saturday 12th May on Church St Liverpool.

On top of our action we will be holding an additional action, this action will take place on the steps of St George’s Hall.

What we are looking to do is have as many pairs of shoes as possible laid out on the steps along with large banners and you as many of you as possible. This action will be for photographs and YouTube Live, Facebook live as well as any press coverage that we can possible get.

So I ask you all,  if you want to have your shoes be part of our action that you message me alisha@alishawhittam.com , I will send you my address and you can send your shoes. If you want to be part of the action yet you can’t get to a post office to send me shoes then you can send me a message which I will write on a luggage tag and attach to a pair of shoes that I have at home.

This is so important , this is the first year of Millions Missing in Liverpool and I want it to be talked about. I want to show every medical professional that we are not going to stand for mediocre anymore. We should all have the same treatment and care package. We should have a service which strives to be better for all Sufferers in our area. 

Millions Missing strives for better research. 

We are the Millions Missing Liverpool and we won’t stand for this anymore.

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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