Merry Christmas

I wanted to take a moment to wish you all a Merry Christmas from my family to yours. Today has been tough and I know that I am not alone in that feeling.

We had an appointment at 8am to pick up our Christmas Dinner so by 9am we were home and I was absolutely floored I knew I needed to take a nap. I woke up at 7:30 pm ish to hear my Husband talking downstairs, everything that I had wanted to do I had missed and I fear that Christmas Day I will also be floored for.

All I hope from each and everyone of you is that if you have someone in your life who is ill that you take a moment to get in touch with them. If you have someone you love please tell them. If you miss someone please tell them, let’s make today the day that the past is the past as you are not guaranteed a tomorrow.

Don’t let regret be a part of your life , don’t let dreams stay dreams , do all you can to make it happen, do all you can to achieve everything you want.

From my family to yours I hope this Christmas gives you all you want , go hold your family tight and make today the best day ever.

Love to you all Now and always. Alisha ❤️

Picture of Alisha

Alisha

Proud Wife, Mother and Nanna . We married 19 years ago in Rome, Italy surrounded by our friends and family. We have the most beautiful, caring, considerate daughter, she makes us proud every single day. I am nan to Alfie, our Black Labrador and he is my best friend in all the world, I love how he understands that just laying next to me is all I need on a bad day and on a good day well it is cuddles and kisses galore. Liverpool born & bred, I never had enough guts to ever move away. Maybe it’s on my cards in the future. I have an illness that has destroyed my life, that illness has led me to blog my life with no filter. I put everything into raising awareness of Myalgic Encephalomyelitis and I would do anything to make sure no one else has to feel the way that I do. We have fun in our little home and I do anything to make my family happy. Love meeting new people over the web and hearing their stories. I Love making new friends and just trying to make a difference in this world.
Facebook X-twitter Youtube Instagram Tiktok Pinterest
Click to shop my Amazon Storefront
A Disney-style cartoon illustration of a dark-haired woman with blue eyes sitting on a bed, writing in a notebook. She is surrounded by a laptop, scattered notes, and a microphone. Two black Labradors, one with a red collar, sit beside her, while a camera records the scene
Visit my YouTube Channel

more Blog Posts

A promotional Amazon Prime Day banner featuring a blue background with shopping items, including a tablet, a dog figurine wearing a pink coat, and various deals. The screen highlights "Top 100 Deals," a vegetable chopper, and a highly-rated camera deal

Amazon Prime Day

In our house, every day is like Amazon Prime Day. This year I wanted to share some of my favourite items so you don't spend money on something that isn't worth it. So here are some of my favourite Amazon
Read more
Collage-style graphic featuring Taylor Swift at The Eras Tour in Anfield, Liverpool on Friday 14th June 2024. Includes a large black-and-white portrait of Taylor, colourful stage visuals, and photos of Taylor performing in a red sequinned outfit and a blue flowing gown.

Taylor Swift The Eras Tour at Anfield

The sight of the bustling crowds heading towards that beautiful fortress of a football stadium fills me with immense pride as a Scouser. The Scouse girls, as always, looked absolutely stunning, but their allure seemed to reach ethereal levels for
Read more
Illustration of a diverse group of LGBTQ+ individuals celebrating Pride Month under a colourful rainbow banner. The group includes people of various races, genders, and abilities, including wheelchair users and individuals holding signs that say “LOVE WINS” and “HUMANS ALL THE SAME.”

Accessibility and Inclusion: Making Pride Truly Welcoming for All

As Liverpool gears up for another joyful Pride celebration, it’s time to ask—who’s really included? For many disabled people, Pride remains physically and emotionally inaccessible, despite its message of love and acceptance. From parade routes with no wheelchair access to
Read more

Why We Need More Disabled MPs in the UK

Disabled people make up over 16 million in the UK, yet only a handful are represented in Parliament. This post explores the barriers disabled candidates face—like inaccessible campaigning, ableism, and lack of funding—and why increasing disabled representation is urgent for
Read more

The ME Pyjama Party

I'm thrilled to invite you to a special event that aims to make a significant impact in the lives of those living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
Read more
A fun and colourful digital illustration promoting the ME Pyjama Party for ME Awareness Week and Severe ME Day. The design features a large, sleepy bear in blue-striped pyjamas and a nightcap, stretching with a yawn. Surrounding the bear are six people dressed in various animal onesies, including a dragon, panda, giraffe, bear, unicorn, and a blue starry suit. The border is decorated with vibrant watercolour balloons in pink, blue, green, and yellow. The text reads: "Join us in your PJs for ME Awareness Week & Severe ME Day - ME Pyjama Party.

ME PJ Party 2024

Together, we can shed light on the challenges faced by those living with ME/CFS and advocate for greater understanding and support
Read more

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

Get Updates In Your Inbox !

Sign up with email to receive news & updates.

Menu

Latest Blogs

Important