A fun and colourful digital illustration promoting the ME Pyjama Party for ME Awareness Week and Severe ME Day. The design features a large, sleepy bear in blue-striped pyjamas and a nightcap, stretching with a yawn. Surrounding the bear are six people dressed in various animal onesies, including a dragon, panda, giraffe, bear, unicorn, and a blue starry suit. The border is decorated with vibrant watercolour balloons in pink, blue, green, and yellow. The text reads: "Join us in your PJs for ME Awareness Week & Severe ME Day - ME Pyjama Party

Join the ME Pyjama Party and Raise Awareness for Myalgic Encephalomyelitis!

Each year, during ME Awareness Week in May and on Severe ME Day in August, we wear our pyjamas to shine a light on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).

🩵 It’s a simple but powerful way to show solidarity with those living with ME/CFS.

And the best part? Joining in is as easy as putting on your PJs!

How to Join the ME Pyjama Party

1️⃣ Put on your pyjamas – Whether you’re at home, work, or out and about, get comfy in your favourite PJs!

2️⃣ Take a picture – Snap a photo of yourself, your family, your colleagues, or even your pet in pyjamas!

3️⃣ Post on social media – Share your PJ pics on your favourite platforms and tag us using the hashtag #MEPJParty

📢 Follow and tag us on social media:

📌 Facebook – ME Pyjama Party
📌 Twitter/X – @mepyjamaparty
📌 Instagram – @mepjparty

Why Your Support Matters

💙 Every post, every picture, and every hashtag helps raise awareness. ME/CFS is often misunderstood, and many people struggle without adequate support or funding for research.

🛏️ By wearing your PJs, you’re making a statement – You’re showing the world that ME/CFS deserves recognition, better healthcare, and more funding.

🙌 Together, we can make a difference.

Thank you for being part of this meaningful movement! I can’t wait to see all of your wonderful PJ pics.

Warm regards,
Alisha 💙

📢 Use these hashtags to spread the word:
#MEPJParty #SevereMEDay #MECFS #MyalgicEncephalomyelitis #InvisibleIllness #ChronicIllnessAwareness

Click here if you need a friend ❤️
Picture of Alisha

Alisha

Proud Wife, Mother and Nanna . We married 19 years ago in Rome, Italy surrounded by our friends and family. We have the most beautiful, caring, considerate daughter, she makes us proud every single day. I am nan to Alfie, our Black Labrador and he is my best friend in all the world, I love how he understands that just laying next to me is all I need on a bad day and on a good day well it is cuddles and kisses galore. Liverpool born & bred, I never had enough guts to ever move away. Maybe it’s on my cards in the future. I have an illness that has destroyed my life, that illness has led me to blog my life with no filter. I put everything into raising awareness of Myalgic Encephalomyelitis and I would do anything to make sure no one else has to feel the way that I do. We have fun in our little home and I do anything to make my family happy. Love meeting new people over the web and hearing their stories. I Love making new friends and just trying to make a difference in this world.
Facebook X-twitter Youtube Instagram Tiktok Pinterest
Click to shop my Amazon Storefront
A Disney-style cartoon illustration of a dark-haired woman with blue eyes sitting on a bed, writing in a notebook. She is surrounded by a laptop, scattered notes, and a microphone. Two black Labradors, one with a red collar, sit beside her, while a camera records the scene
Visit my YouTube Channel

More Blog Posts

Illustration of a woman surrounded by bright light and energy lines, representing the pain and overwhelm of ME/CFS. Text overlay reads: "The Tools That Help Me Live My Life with ME/CFS."

What ME/CFS Really Feels Like – And What Gets Me Through It

This blog shares my lived experience with ME/CFS flares—from symptoms like pain and cognitive fog to tools, medications, and routines that help me cope.
Read more
Illustration of a dentist and magical tooth character with the words “Domiciliary Dental Care” – representing domiciliary dental care in Liverpool.

Finding Dignity in Dental Care: My Experience with Domiciliary Dentistry in Liverpool

Struggling to access a dentist due to chronic illness or disability? Learn how domiciliary dental care changed everything for me in Liverpool.
Read more
Illustration of a smiling man holding a large blue National Disability Card against a pink background with text promoting the card as a discreet and effective way to communicate disability.

National Disability Card UK: A Lifeline for People with Disabilities

The National Disability Card is more than just ID—it’s a powerful tool for people with visible and invisible disabilities to access support, travel more freely, and live with greater confidence. From emergency contact features to priority access at venues like Disneyland Paris, this card helps ensure you're seen, understood, and supported without needing to explain your condition time and time again.
Read more
Illustrated digital graphic of a woman in a wheelchair holding a passport and boarding pass, with speech bubbles that say, “Let’s Talk About Travelling with a Wheelchair.” The background is pink with a border featuring travel-related icons like passports, airplanes, cameras, and tickets. At the bottom, the website https://alishawhittam.com is displayed.

Travelling Abroad with a Wheelchair: A Comprehensive Guide for Smooth and Safe Journeys

Travelling abroad with a wheelchair comes with unique challenges, but with the right preparation, you can explore the world smoothly and safely. From choosing the right airline to protecting your wheelchair from damage, this guide covers everything you need to know to make your journey stress-free. ✈️ Discover essential travel tips, learn your rights as a disabled passenger, and find out what to do if your wheelchair is damaged in transit. With the right strategies, accessible travel can be enjoyable
Read more
A tribute image featuring a serene blue sky with white clouds, angel wings, a halo, and the name "Maeve Boothby-O’Neill" in elegant lettering, honouring the memory of a Myalgic Encephalomyelitis sufferer

ME Matters: A Tragic Loss & the Urgent Need for Change

💔 Maeve Boothby-O’Neill’s tragic passing at just 27 highlights the urgent need for change in the care of ME patients. Despite multiple hospital admissions, Maeve was failed by a system that lacked the specialised care she desperately needed. Her story is not an isolated incident—it’s a wake-up call. This post explores the failures of our healthcare system, the stigma surrounding ME, and the urgent reforms needed to prevent more lives from being lost. Maeve’s death must not be in vain.
Read more
A before-and-after comparison of a workspace showing the impact of a cable management kit. The “Before” side has tangled and messy cables, while the “After” side displays a neat and organised setup with cables secured.

The Ultimate Guide to Cable Management: Keep Your Home Pet-Safe & Clutter-Free

Struggling with messy cables? Learn how to organise your wires and prevent pets from chewing them with these simple and effective cable management solutions!
Read more

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

Get Updates In Your Inbox !

Sign up with email to receive news & updates.

Menu

Latest Blogs

Important