A cheerful graphic for “ME Pyjama Party 2025” featuring colourful balloons and six people in playful animal-themed pyjamas including a giraffe, panda, unicorn, polka-dot sleeper, dragon, and bear. The background is cream with pastel purple text.

ME Pyjama Party

Join the all-new week-long ME Pyjama Party and Raise Awareness for Myalgic Encephalomyelitis and Myalgic Encephalomyelitis week!

Each year, during ME Awareness Week in May and on Severe ME Day in August, we wear our pyjamas to shine a light on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).

🩵 It’s a simple but powerful way to show solidarity with those living with ME/CFS.

And the best part? Joining in is as easy as putting on your PJs!

How to Join the ME Pyjama Party

1️⃣  Put on your pyjamas – Whether you’re at home, work, or out and about, get comfy in your favourite PJs!

2️⃣ Take a picture – Snap a photo of yourself, your family, your colleagues, or even your pet in pyjamas!

3️⃣ . Post on social media – Share your PJ pics on your favourite platforms and tag us using the hashtag #MEPJParty

📢 Follow and tag us on social media:

📌 Facebook – ME Pyjama Party
📌 Twitter/X – @mepyjamaparty
📌 Instagram – @mepjparty

Why Your Support Matters

💙 Every post, every picture, and every hashtag helps raise awareness. ME/CFS is often misunderstood, and many people struggle without adequate support or funding for research.

🛏️ By wearing your PJs, you’re making a statement – You’re showing the world that ME/CFS deserves recognition, better healthcare, and more funding.

🙌 Together, we can make a difference.

Thank you for being part of this meaningful movement! I can’t wait to see all of your wonderful PJ pics.

Warm regards,
Alisha 💙

📢 Use these hashtags to spread the word:
#MEPJParty #SevereMEDay #MECFS #MyalgicEncephalomyelitis #InvisibleIllness #ChronicIllnessAwareness

Picture of Alisha

Alisha

Proud Wife, Mother and Nanna . We married 19 years ago in Rome, Italy surrounded by our friends and family. We have the most beautiful, caring, considerate daughter, she makes us proud every single day. I am nan to Alfie, our Black Labrador and he is my best friend in all the world, I love how he understands that just laying next to me is all I need on a bad day and on a good day well it is cuddles and kisses galore. Liverpool born & bred, I never had enough guts to ever move away. Maybe it’s on my cards in the future. I have an illness that has destroyed my life, that illness has led me to blog my life with no filter. I put everything into raising awareness of Myalgic Encephalomyelitis and I would do anything to make sure no one else has to feel the way that I do. We have fun in our little home and I do anything to make my family happy. Love meeting new people over the web and hearing their stories. I Love making new friends and just trying to make a difference in this world.
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What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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