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In the realm of chronic illnesses, Myalgic Encephalomyelitis (ME) stands as a formidable challenge, affecting millions worldwide. Despite the invisible nature of the illness, its impact is profound and pervasive, leaving many individuals bedridden and isolated.
However, amidst the struggle, a beacon of hope shines bright: Our ME Pyjama Party.
Uniting for Change: The ME Pyjama Party Movement
In the realm of chronic illnesses, Myalgic Encephalomyelitis (ME) stands as a formidable challenge, affecting millions worldwide. Despite the invisible nature of the illness, its impact is profound and pervasive, leaving many individuals bedridden and isolated.
However, amidst the struggle, a beacon of hope shines bright: Our ME Pyjama Party.
Imagine a gathering where physical limitations dissolve, where camaraderie thrives, and where voices silenced by illness find resonance. The ME Pyjama Party embodies this vision—a global initiative that transcends geographical boundaries to foster solidarity and empowerment within the ME community.
At its core, the ME Pyjama Party is so much more than just an event; it’s a symbol of resilience and unity.
It is crucial for the entire ME community to rally behind this movement:
1. **Visibility and Awareness**: The ME Pyjama Party serves as a platform to amplify the voices of those battling the illness. By getting involved, we shed light on the daily struggles, challenges, and triumphs of living with ME. Through social media campaigns, livestreams, and community events, awareness spreads like wildfire, dispelling preconceived ideas, misconceptions and fostering understanding.
2. **Community Building**: For many living with ME, isolation is a harsh reality. The Pyjama Party transcends physical barriers, fostering a sense of belonging and camaraderie. It provides an opportunity for individuals to connect with others who understand their journey, forging friendships that provide solace and support in times of need.
3. **Advocacy and Action**: In a world where ME is often misunderstood and marginalized, advocacy is paramount. The Pyjama Party empowers individuals to become advocates for change, advocating for increased research funding, improved healthcare services, and greater societal support.
Through collective action, we are able to amplify our voices, demanding recognition and justice for the ME community.
4. **Fundraising for Research**: Research is the cornerstone of progress in understanding and treating ME. The Pyjama Party serves as a fundraising powerhouse, rallying support for research initiatives aimed at unraveling the mysteries of the illness. Every dollar raised brings us one step closer to effective treatments and, ultimately, a cure.
5. **Celebration of Resilience**: Living with ME requires immense strength and resilience. The Pyjama Party celebrates this resilience, honoring the courage and perseverance of individuals who navigate the challenges of the illness with grace and determination. It’s a testament to the indomitable spirit of the human heart, inspiring others to face their own adversities with hope and courage.
In essence, the ME Pyjama Party is not just an event; it’s a movement—a movement fueled by passion, driven by purpose, and united in solidarity. It’s a reminder that, despite the darkness of this awful illness, there is light in community, strength in unity, and hope in collective action.
So please join the party, don your pajamas, and let your voice be heard.
Together, we can spark change, ignite hope, and pave the way for a brighter future for the entire ME community.





Why I want to make a difference
The day of my diagnosis after months of waiting, I promised myself that no one would feel or have to go through what my family had gone through.
No-one would have to feel that loneliness or cry night after night being unable to handle the pain. For me I had yet to go through the worst of it which made me even more determined.
I wanted to talk to someone who really understood what I was feeling so I started reaching out to others on social media. I was so lucky to find Sian, Ali and Alan.
Finding them and being able to talk about everything made a huge difference. Alan would send me a quote or just a few kind words when he knew I was having a bad day and I truly wish I could tell him how much that changed my day but unfortunately Alan passed away .
I will never forget Alan and each time I see his picture in my phone I smile. It helps that the pic is from the day we all dressed as princesses to help raise money for ME charities and he went all out including a wig beautiful tiara and wand.
I Felt Alone
Being bedridden isolates you from so much, but being bedridden with ME means that even the smallest task requires an enormous effort.
When I was first diagnosed with ME, I felt profoundly alone. I would read about incredible fundraising achievements, like marathons and charity walks, and while I admired their efforts, I couldn’t help but feel excluded. I couldn’t participate in a run or walk, and since I could no longer work, involving colleagues or workplace communities wasn’t an option. That’s when I started thinking about what I could do.
At that point, the only thing I could do was lie in bed in my pajamas. And then it clicked—why not start a Virtual PJ Party? An event that every single person could participate in, no matter how severe their symptoms were.
Join The ME Pyjama Party
The ME Pyjama Party is about raising awareness and giving a face to ME, not just another statistic. All you need to do to get involved is upload a photo of yourself in your pajamas to social media. If you’re able, you can also raise money for your favorite ME charity. But the heart of this event is to show the world the reality of living with ME, one picture at a time.
One day, I truly believe that #MEPyjamaParty will be trending worldwide, bringing awareness to the struggles and resilience of those living with ME.
Awareness Week
ME Awareness Week runs from May 8th – May 14th, 2025, and we’ll be celebrating on Monday, May 12th, which coincides with ME Awareness Day. If you’re not feeling up to posting a photo yourself, you’re welcome to send it to us, and we’ll share it on your behalf.
Severe ME Day
Severe ME Day is on August 8th, 2025.
We invite you to take a photo in your PJs and send it to us to be featured on our social media pages. We’ll gladly tag you to show your support and participation. If you’re posting directly to your own social media, please tag us and use #MEPyjamaParty so we can find and share your post.
Together, we can raise awareness and bring visibility to the realities of living with ME.

making a difference

The ME Pyjama Party
Get comfy for a cause! The ME Pyjama Party is a powerful yet simple way to raise awareness for Myalgic Encephalomyelitis (ME).
During ME Awareness Week and Severe ME Day, we’re inviting you to wear your pyjamas in solidarity with those who are bed-bound due to this debilitating illness.
How to Join:
Take a picture in your PJs
Post it on social media using #MEPJPARTY
Tag friends & spread the message!

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