ME PJ Party & Whats it all about ?

/ Myalgic Encephalomyelitis / By

Friday 12th May 2017 is launch day for ME PJ Party .

ME PJ Party is dedicated to raising money & awareness of ME .

ME PJ Party doesn’t care how Severe your ME is , it doesn’t matter if you are having a good day or a bad day. You could go shopping in your PJs or to work ( if your manager allows it of course , if they do say no direct them to this page! ) .

All you need to do is take or have a picture taken in your PJs and then post it to social media using #MEPJParty .
ME PJ Party has got me so excited 😆

Get all your friends and family to like the ME PJ Party page so I can keep everyone in the loop x

https://m.facebook.com/MEPJParty/
All you need to do is :

On May 12th spend the day in your PJs , take a picture or have someone take your picture and post it to social media using #MEPJParty
Aim :

Raise money & awareness of ME by doing something that every single ME Sufferer in the world can be included in .

If you are still working ask managers permission first 🤔

It doesn’t matter if you are in bed and having a bad day or out for a bit of fresh air , you can take your ME PJ Party picture anywhere .

Let’s show the world the real face of ME not just a statistic.

Imagine going on twitter and seeing #MEPJParty trending with pictures of all our brave ME Warriors showing the world just what ME is .

We have FB , Twitter and Instagram pages already set up and raring to go .

Fundraising:

You do not have to fundraise as I completely understand that not all ME Sufferers are up to it .

I am fundraising and my charity of choice is The ME Association.

I chose them because of everything they have done for me personally. I wouldn’t have got through the early days without them .

Here is a link to my JustGiving page

2018 JUST GIVING PAGE COMING SOON 

The Future :

I want this to be the start of something.

Something people want to get involved in .

I would love your input and suggestions.

If anyone wants to get involved then please get in touch x

2017 is just the start and already I am planning 2018 .

I have Severe ME so I am doing as much as I can without pushing myself to hard .

In the near future I am hoping to be looking at merchandise TShirts , Flyers , cupcake toppers maybe even ME PJ Party Pyjamas .
To conclude .

It doesn’t matter how ill you are on the day or where or what you are doing . All this needs to be a success is your #MEPJParty picture uploaded to social media .

Let’s create a real buzz about what ME really is and not what people assume it to be .

Most importantly ME PJ Party is something that every single ME Sufferer across the world can be involved in .
Please help by sharing the page and most importantly getting involved.
Let’s make 2017 they year that we show the world the real face of ME x
All my love x x

Alisha x x

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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