Myalgic Encephalomyelitis ,Ear seeds and Dragons Den

Myalgic Encephalomyelitis, Ear Seeds, Dragons Den & Why we can’t let this happen again!

/ Disabled blogger, Myalgic Encephalomyelitis / By

Myalgic Encephalomyelitis – Ear Seeds

Myalgic Encephalomyelitis, Ear Seeds, Dragons Den & Why we can’t let this happen again!

Today, I talk about something that’s deeply personal to me and affects millions of people worldwide – Myalgic Encephalomyelitis, or ME.

Myalgic Encephalomyelitis is a chronic illness that I have been living with since 2012.

It’s a condition that can affect almost every aspect of your life. Extreme fatigue, pain, and cognitive issues are just some of the daily challenges that people with ME face.

Recently, you might have heard about a controversial moment on an episode of Dragons’ Den, a product was pitched as a cure for ME, a condition for which there is  no cure. This has raised many questions and concerns within the ME community.

As we grapple with the fallout from the Dragons’ Den controversy, it’s imperative that we move beyond mere outrage and towards tangible action. This includes advocating for increased research funding for ME, reforming medical curricula to include comprehensive education on ME, and holding media outlets accountable for the dissemination of accurate and responsible health information.

Join me on this journey, and let’s raise awareness together. 

Every view, like, and share contributes to making a difference.

If you are suffering with Myalgic Encephalomyelitis and need someone to talk to click this link https://alishawhittam.com/contact-me/

🔗 Connect with Me:

Instagram: @alishawhittam

Twitter: @alishawhittam

Facebook: https://www.facebook.com/alishajwhittam

🫶Support My Mission:

As I navigate life with Myalgic Encephalomyelitis, Endometriosis, Steatohepatitis, and De Quervains Syndrome, your support means the world. 

🌐 Visit https//alishawhittam.com for additional insights, resources, and a deeper dive into my journey.

Sources used – 

https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms.html

https://meassociation.org.uk/what-is-me-cfs/

https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

Myalgic Encephalomyelitis, Ear Seeds, Dragons Den & Why we can’t let this happen again!

🎬Visit my Youtube Channel to see this video – https://www.youtube.com/@AlishaWhittam

MEAwareness #dragonsden #earseeds #MyalgicEncephalomyelitis #themeassociation #MEAction #actionforME #DrCharlesShepherd

Related Posts

What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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