Hello and welcome,
My name is Alisha, and I wanted to take a moment to share a little more of my life with you — the real, often unseen world that I live in every day. I recently uploaded a new YouTube video called “A Day in My Life”, and while it’s just a small glimpse, I wanted to explain a little more about what living with severe Myalgic Encephalomyelitis (ME) is truly like for me.
I live with multiple complex health conditions:
Myalgic Encephalomyelitis (ME)
Endometriosis
Steatohepatitis (a form of liver disease)
De Quervain’s Tenosynovitis (in both hands)
Over the past ten years, these illnesses have stolen more and more of my independence. Today, I am completely bedridden. On what I call a “good” day, I might be able to make it downstairs in my home, but even then, my body remains severely limited. Every single action is exhausting. Every single movement, a negotiation between strength, pain, and survival.
I have a powered wheelchair, which gives me a small piece of freedom if my body can tolerate it, but those days are becoming rarer. ME is a neurological disease, but it affects every part of my body — my immune system, my muscles, my brain, even how my heart beats. It’s not “just tiredness”. It’s whole-body dysfunction that leaves me trapped in a body that no longer works the way it’s supposed to.
To even have a basic level of functioning, I rely on a complex daily routine of medications:
Propranolol
Oramorph (liquid morphine)
Zomorph (slow-release morphine)
Duloxetine
Gabapentin
Amitriptyline
Hydroxyzine
Mefenamic Acid
Avamys (for nasal inflammation)
Omeprazole (for stomach protection)
These medications are not a cure — there is no cure for ME — but they sometimes make unbearable symptoms a little more manageable.
Finding Light on the Darkest Days: My Alfie
In the midst of all this, there is one very bright light in my life: my beautiful black Labrador, Alfie.
Alfie is more than a dog to me; he is my best friend, my support system, and often the only reason I can smile on the hardest days.
In the video I uploaded, you’ll notice that Alfie never leaves my side. His loyalty and sensitivity are incredible — he often senses a crash or severe symptom flare long before I even realise what’s happening. He comforts me without needing words. When the pain gets overwhelming or when I’m stuck editing videos, feeling ill, he gently rests his paws on me, refusing to let me push myself too far. And when the work is finally packed away, he cuddles up against me, his warmth reminding me that even when life feels unbearably hard, I am not alone.
A Good Bad Day
The YouTube video I’ve shared is what I call a “good bad day”.
To most people, it would look like a day of extreme stillness and exhaustion — but for me, this was a day where I could capture little moments of connection, strength, and survival.
Creating videos like this is deeply important to me. I hope that by opening a window into my reality, someone, somewhere, might feel a little less alone. Maybe someone who is newly diagnosed. Maybe someone who is silently struggling. Maybe a loved one is trying to understand.
Here’s the video if you’d like to watch:
👉 Watch “A Day in My Life”
Why Sharing Matters
Living with a severe, invisible illness often feels like being erased from the world, but platforms like YouTube give me a way to still be seen, heard, and connected.
If you watch and enjoy the video, it would mean the world to me if you could:
Leave a thumbs up
Share a comment (they truly lift my spirit!)
Share the video with your friends, family, or social media communities
You never know who might stumble across it — and who might desperately need to feel seen, validated, and less alone.
Thank you from the bottom of my heart for reading, watching, and being part of this journey with me. 🫶
With love,
Alisha ❤️
