Christmas with Myalgic Encephalomyelitis is Hard

/ Events, Myalgic Encephalomyelitis, Severe Myalgic Encephalomyelitis / By
Vlogmas

Christmas with Myalgic Encephalomyelitis is hard so if you are suffering this Christmas I send you all my love.

You are not alone, I just wanted to let you know that if you have Myalgic Encephalomyelitis and need a friend or just someone to talk to over the Christmas holidays, please feel free to message me. I’m not claiming to have all the answers or to be able to solve your problems, but I am a sufferer too.

I was diagnosed with this illness in 2012 so I understand what you are feeling. I have spent Christmas Day all alone and in tears.

Christmas is supposed to be a magical time filled with parties and family according to tv programs, films or magazines.
Unfortunately, they don’t talk about the millions of us who are unable to join in with festivities or see friends and family.

Myalgic Encephalomyelitis finished my career, took away all my dreams and aspirations.
Myalgic Encephalomyelitis has taken away my life and destroyed the lives of my Husband & Daughter.
I have missed Birthdays, Weddings and funerals of people I love dearly.

Myalgic Encephalomyelitis has left me bedridden it’s taken away my independence so I understand.

So if you need to chat just message me here or email me at alisha@alishawhittam.com I can’t do much anymore but I can listen 🫶🫶

Love always

Alisha 🫶

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What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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