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Myalgic Encephalomyelitis/CFS Symptoms and What Helps me

Accessibility & Advocacy, Life with Chronic Illness, Personal Recommendations & Reviews /

Facebook Twitter Youtube Instagram Tiktok Pinterest Myalgic Encephalomyelitis/CFS Symptoms and What Helps Me  Over the past few weeks I have had a difficult time with my illness here is my real-life description of my Myalgic Encephalomyelitis/CFS Symptoms and What Helps Me. The pain takes over the whole of my body every single muscle feels like

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Skelton with his feet up and hands behind his head. The text reads “Not a Lazy Bones” “I have Myalgic Encephalomyelitis”

Book Recommendations for Chronic Illness/Myalgic Encephalomyelitis Sufferers

Accessibility & Advocacy, Life with Chronic Illness, Personal Recommendations & Reviews /

I think it is only right for me to share with you my must-read book recommendations for Myalgic Encephalomyelitis sufferers. I have turned to these books many times since my diagnosis as it is incredibly scary to start feeling worse with an illness like Myalgic Encephalomyelitis. So any time that I started getting more pain or I felt worse than normal I have used these books to see if it could be additional Myalgic Encephalomyelitis symptoms.

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What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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