Accessibility & Advocacy

Disability rights, accessibility reviews, support resources.

Graphic with bold title “IMPORTANT – I Need Your Help!” asking people with Myalgic Encephalomyelitis (ME) in Liverpool, Southport, Wirral, and Chester to share their experiences. Includes an email address for contact and illustrations of a megaphone and a woman in a wheelchair holding a flag.

Calling All ME/CFS Sufferers in Liverpool & Surrounding Areas: Your Voice Is Needed!

Are you living with Myalgic Encephalomyelitis (ME/CFS) in Liverpool, Southport, Wirral, or Chester? I’m collecting personal stories to highlight the gaps in care across Merseyside and push for better support. This is a confidential, community-led project — your voice could help drive real change.

Calling All ME/CFS Sufferers in Liverpool & Surrounding Areas: Your Voice Is Needed! Read More »

Pink figure sitting with arms wrapped around knees next to the words “You are not alone in this” on a purple background — offering comfort and solidarity for those living with chronic illness or mental health struggles.

It’s Not Just Tiredness – Living with Severe Myalgic Encephalomyelitis

t’s not just tiredness. It’s the kind of exhaustion that steals your ability to move, speak, or even think clearly. Myalgic Encephalomyelitis has taken so much from me — but I’m still here, sharing my truth in the hope that someone else feels a little less alone. This is what life with Severe ME really looks like

It’s Not Just Tiredness – Living with Severe Myalgic Encephalomyelitis Read More »

Three illustrated people protest against false medical claims, with text reading "Ear Seeds Do Not Cure Myalgic Encephalomyelitis" and symbols of rejection like ‘NO’ signs, stop hands, and protest icons.

The Truth About Myalgic Encephalomyelitis and Ear Seeds: Why Dragons’ Den Got It So Wrong

A recent Dragons’ Den episode pitched ear seeds as a cure for Myalgic Encephalomyelitis—an illness I live with every day. Here’s why that claim is not only wrong, but dangerous. Let’s raise awareness, push for better education, and demand accurate health information in the media.

The Truth About Myalgic Encephalomyelitis and Ear Seeds: Why Dragons’ Den Got It So Wrong Read More »

Illustration showing mitochondria with expressions and a woman in bed with a low battery icon, representing energy depletion in ME/CFS. Designed for a blog post about Dr Paul Hwang’s research on mitochondrial dysfunction in Myalgic Encephalomyelitis.

Dr Paul Hwang and ME/CFS: A Glimmer of Hope in the Research World

Dr Paul Hwang’s latest ME/CFS research offers new hope for those living with chronic fatigue. Discover how his unexpected findings on mitochondria and the WASF3 protein could reshape our understanding of energy production in Myalgic Encephalomyelitis—and why this matters for millions still waiting to be heard.

Dr Paul Hwang and ME/CFS: A Glimmer of Hope in the Research World Read More »

Myalgic Encephalomyelitis/CFS Symptoms and What Helps me

Facebook Twitter Youtube Instagram Tiktok Pinterest Myalgic Encephalomyelitis/CFS Symptoms and What Helps Me  Over the past few weeks I have had a difficult time with my illness here is my real-life description of my Myalgic Encephalomyelitis/CFS Symptoms and What Helps Me. The pain takes over the whole of my body every single muscle feels like

Myalgic Encephalomyelitis/CFS Symptoms and What Helps me Read More »

Skelton with his feet up and hands behind his head. The text reads “Not a Lazy Bones” “I have Myalgic Encephalomyelitis”

Book Recommendations for Chronic Illness/Myalgic Encephalomyelitis Sufferers

I think it is only right for me to share with you my must-read book recommendations for Myalgic Encephalomyelitis sufferers. I have turned to these books many times since my diagnosis as it is incredibly scary to start feeling worse with an illness like Myalgic Encephalomyelitis. So any time that I started getting more pain or I felt worse than normal I have used these books to see if it could be additional Myalgic Encephalomyelitis symptoms.

Book Recommendations for Chronic Illness/Myalgic Encephalomyelitis Sufferers Read More »

Sick and tired of feeling sick and tired

The Government has a plan

The Government has written a plan to improve the lives of people living with Myalgic Encephalomyelitis but is it too little too late? When I was first diagnosed with Myalgic Encephalomyelitis in 2012 I was relatively lucky, now ok The appointment to see the ME Team in Liverpool was lost and then budget cuts happened so I didn’t see someone as soon as I needed to

The Government has a plan Read More »