Advocate / Influencer / Creator
Why we should be building a Myalgic Encephalomyelitis Community, something for the Myalgic Encephalomyelitis Community completely operated by The Myalgic Encephalomyelitis Community.
My advocacy for building a Myalgic Encephalomyelitis Community is so much more than a personal mission—it is a call to action for society at large. Through education, empathy, and empowerment, I am dedicated to making a difference in the lives of those affected by Myalgic Encephalomyelitis, advocating for a future where this condition is met with the seriousness and support it deserves. Most importantly we will strive to offer a Myalgic Encephalomyelitis Community for Myalgic Encephalomyelitis sufferers as well as their families.
As a passionate advocate for Myalgic Encephalomyelitis (ME) a complex and debilitating condition, I am deeply committed to raising awareness about the complexities and overwhelming impact of this condition.
Living with Myalgic Encephalomyelitis as well as Chronic Illnesses such as Endometriosis, Steatohepatitis, and De Quervain’s Syndrome, has provided me with not only a firsthand understanding of life with these severe conditions but also a burning desire to bring about change and offer support for those afflicted as well as their families.
Dealing with Myalgic Encephalomyelitis presents me with daily challenges. These obstacles have fueled my dedication to spreading awareness within the Myalgic Encephalomyelitis community and to the public.
It is important to bridge the gap of understanding and empathy between those affected and the general public.
To make a difference, I am educating myself to utilise social media and digital platforms as a way to empower my voice for education, raising awareness and building a Myalgic Encephalomyelitis Community of sufferers and their families locally as well as around the world.
By utilising social media, you can make a real impact and drive positive change, advocacy and community building. Recognising the potential of these platforms to reach a wide and diverse audience, I initiated a dedicated YouTube channel. Click here to see my Videos
This endeavour aims not only to share my narrative and insights into living with chronic illnesses but also to create a space for dialogue, education, and mutual support. My content illuminates the realities of Myalgic Encephalomyelitis highlighting both the struggles and resilience of those who live with it daily.
I am committed to pushing for greater medical and research attention to be given towards understanding and treating Myalgic Encephalomyelitis.
With the help of my Daughter, we have created a supportive Myalgic Encephalomyelitis Community for those individuals who are affected by this illness as well as their carers.
Click here to visit Our Facebook Page
Sharing my personal stories and experiences allows me to create a genuine emotional connection. This approach combines factual and emotional elements to promote empathy, challenge misconceptions and stereotypes, and foster a broader understanding of Myalgic Encephalomyelitis.
My dedication extends far beyond my digital persona and while every day is dictated by my illness; I am actively involved in networking with charities, healthcare professionals, and researchers, as well as my fellow peers to keep up to date with the latest developments in ME research and treatment strategies. This continuous learning and collaboration underscore my commitment to not just raising awareness but also contributing to the search for solutions that can improve the quality of life for Myalgic Encephalomyelitis patients.
In order to prepare for the future, I am constantly learning how to use a cameraconvey a story. Understanding how to use music to enhance my message is also a focus. When editing my content for both long-form and short-form platforms, I consider the specific message I want to communicate. Furthermore, gaining an understanding of social media algorithms is crucial to reach a wider audience. to effectively
In 2024 I am looking to broaden my advocacy efforts while discovering new platforms and partnerships that can benefit sufferers.
My ultimate aim is to create a world where Myalgic Encephalomyelitis is not only acknowledged its understood. A world in which Myalgic Encephalomyelitis symptoms are treated effectively and hopefully, in the future, prevented.
By sharing my journey, stories from my family and the stories of other Myalgic Encephalomyelitis sufferers, I aim to inspire action, foster hope, and drive forward a powerful movement that brings about real and lasting change for the Myalgic Encephalomyelitis community.
To conclude my advocacy for Myalgic Encephalomyelitis is so much more than a personal mission—it is a call to action for society at large.
Through education, empathy, and empowerment, I am dedicated to making a difference in the lives of those affected by Myalgic Encephalomyelitis, advocating for a future where this condition is met with the seriousness and support it deserves.
I share my journey as a testament to the power of resilience and the impact one voice can have in echoing the struggles and hopes of many, paving the way for a brighter, more inclusive future.
Building a Myalgic Encephalomyelitis Community
Building a community for people with Myalgic Encephalomyelitis (ME) that is run by individuals living with Myalgic Encephalomyelitis themselves holds immense potential for several compelling reasons:
If you are looking for help and support I have listed some of our Myalgic Encephalomyelitis Community groups below.
Friends with ME
Friends with ME is a support network of people with ME or “Friends with ME” It is a group where we can talk openly to people who understand our feelings. This group will very shortly be running support groups in Liverpool. This is something I have always wanted to happen for Liverpool and I am aiming to have group meetings up and running in 2024!
Talk with ME
Talk with ME is a page to share information about ME. Talk with ME will again be setting up Zoom calls to allow sufferers to connect to others who understand what they are feeling. Talk with ME is here to support Our Family, Friends and Carers as we understand that this illness directly affects the people closest to us. Talk with ME is a safe place, we do not allow bullying or spam comments. Any member can send a message directly to me if they are uncomfortable and I will personally investigate before taking action.
Myalgic Encephalomyelitis Carer Community
Myalgic Encephalomyelitis Carer Community is here to allow people who care for Myalgic Encephalomyelitis sufferers to talk privately. It is no secret that life with Myalgic Encephalomyelitis is extremely difficult yet the people who care for ME sufferers are often forgotten about. Alisha wanted this page to be a place where the carers and families could talk privately, a place where we could ask each other for help and support or advice. This group is managed by Alishas' Daughter who also works full time so if you do have any questions and you need help please message us and we will come back to you as soon as we can.
Disabled and Proud
Welcome to Disabled & Proud, a supportive community founded by Alisha dedicated to celebrating and empowering individuals with disabilities in Liverpool and beyond. At Disabled & Proud, we believe that disability is not a limitation but a unique aspect of identity to be embraced with pride. Our group strives to create a welcoming and inclusive space where individuals with disabilities can connect, share experiences, and find strength in solidarity. Through our community, we aim to challenge stereotypes, break down barriers, and promote acceptance and inclusion for people of all abilities. Whether you're living with a visible or invisible disability, whether it's physical, cognitive, or mental, you are valued and respected here. Together, we can rewrite the narrative surrounding disability, celebrate our achievements, and create a more inclusive society where everyone can thrive. Join us at Disabled & Proud and let's celebrate our diversity, advocate for change, and show the world that we are strong, capable, and proud of who we are, disabilities and all.
ME Pyjama Party
Get ready to cosy up for a cause we can all join in on. The ME Pyjama Party is a day of action that is a fun and meaningful way to raise awareness and support for Myalgic Encephalomyelitis (ME). On The ME Pyjama Party Day, we encouraged sufferers and their carers/friends/family/workplaces to put on their favourite pyjamas and join us online to share our funny/silly/goofy pics using #MEPJParty to shine a spotlight on ME and its impact on millions worldwide. By wearing our pyjamas proudly, we're not only showing solidarity with those affected by ME | ME/CFS | Chronic Fatigue Syndrome but also raising much-needed awareness about this often misunderstood illness. Together, we can educate others, challenge misconceptions, and advocate for better support and research funding for ME. So, grab your comfiest pyjamas, join The ME Pyjama Party, and let's make some noise for Myalgic Encephalomyelitis awareness!
Myalgic Encephalomyelitis Awareness Liverpool & Northwest
Our group is dedicated to raising awareness, providing support, and advocating for those affected by Myalgic Encephalomyelitis (ME | ME/CFS | Chronic Fatigue Syndrome ) in Liverpool and the surrounding areas. ME, also known as Chronic Fatigue Syndrome (CFS), is a debilitating illness characterised by extreme fatigue, cognitive difficulties, and other symptoms that can significantly impact daily life. Through our support group, we aim to create a safe and understanding community where individuals with ME can connect, share experiences, and find solidarity. We believe that by coming together, sharing knowledge, and advocating for greater recognition and support, we can make a meaningful difference in the lives of those living with ME. Whether you're newly diagnosed, a long-time sufferer, or a supporter of the ME community, we welcome you to join us in our mission to raise awareness, foster understanding, and support each other on our journey with Myalgic Encephalomyelitis.
