My advocacy for building a Myalgic Encephalomyelitis Community is so much more than a personal mission—it is a call to action for society at large. Through education, empathy, and empowerment, I am dedicated to making a difference in the lives of those affected by Myalgic Encephalomyelitis, advocating for a future where this condition is met with the seriousness and support it deserves.

Most importantly we will strive to offer a Myalgic Encephalomyelitis Community for Myalgic Encephalomyelitis sufferers as well as their families.

As a passionate advocate for Myalgic Encephalomyelitis (ME) a complex and debilitating condition, I am deeply committed to raising awareness about the complexities and overwhelming impact of this condition.

Living with Myalgic Encephalomyelitis as well as Chronic Illnesses such as Endometriosis, Steatohepatitis, and De Quervain’s Syndrome, has provided me with not only a firsthand understanding of life with these severe conditions but also a burning desire to bring about change and offer support for those afflicted as well as their families.

Dealing with Myalgic Encephalomyelitis presents me with daily challenges. These obstacles have fueled my dedication to spreading awareness within the Myalgic Encephalomyelitis community and to the public.

It is important to bridge the gap of understanding and empathy between those affected and the general public.

To make a difference, I am educating myself to utilise social media and digital platforms as a way to empower my voice for education, raising awareness and building a Myalgic Encephalomyelitis Community of sufferers and their families locally as well as around the world.

By utilising social media, you can make a real impact and drive positive change, advocacy and community building. Recognising the potential of these platforms to reach a wide and diverse audience, I initiated a dedicated YouTube channel.

Click here to see my YouTube Videos

Help is available

My own journey began with personal health challenges related to Myalgic Encephalomyelitis and Endometriosis. Recognizing a lack of empathy and understanding in society, I vowed to decided to become an advocate for change.

Over the years, I have engaged in numerous advocacy initiatives, created a supportive community platform, and have set myself up to become an influencer in the chronic illness arena.  By raising awareness our community has not only impacted individuals facing similar challenges but has also contributed to a broader dialogue about chronic illnesses in our society.

It’s time for change !

Building a community for people with Myalgic Encephalomyelitis (ME) that is run by individuals living with Myalgic Encephalomyelitis themselves holds immense potential for several compelling reasons:

Ownership and Leadership

By being led by individuals with Myalgic Encephalomyelitis, the community promotes a sense of ownership and leadership among its members.

This fosters a collaborative environment where everyone has a voice and can contribute to shaping the direction and initiatives of the community, ensuring that it remains relevant, inclusive, and responsive to the needs of its members

Why this is so important

A Myalgic Encephalomyelitis Community for people with Myalgic Encephalomyelitis that is run by individuals living with the condition has the potential to be a transformative force, offering support, empowerment, advocacy, and a sense of belonging to its members while also driving positive change in the broader understanding and treatment of Myalgic Encephalomyelitis.

 

Recent blogs

This journey taught me the power of resilience and I hope that by sharing my experiences good and bad I can raise awareness and offer support to those facing similar challenges.

These aren’t just any rings—they hold so much sentimental value. My engagement ring for obvious reasons but my wedding ring was my Nan’s wedding ring, a cherished gift she gave us on the day we got engaged. I had never took my rings off since the day of our wedding so having them cut off left me in tears 😭
Join the ME Pyjama Party! 💙 Each year, during ME Awareness Week (May) and Severe ME Day (August), we wear pyjamas to raise awareness for Myalgic Encephalomyelitis (ME/CFS). How to join: 🛏️ Wear your PJs 📸 Take a picture 📲 Post on social media with #MEPJParty Help shine a light on this often misunderstood illness. Every post makes a difference! #SevereMEDay #MECFS #InvisibleIllness #ChronicIllnessAwareness
In our house, every day is like Amazon Prime Day. This year I wanted to share some of my favourite items so you don't spend money on something that isn't worth it. So here are some of my favourite Amazon products -
As Liverpool gears up for another joyful Pride celebration, it’s time to ask—who’s really included? For many disabled people, Pride remains physically and emotionally inaccessible, despite its message of love and acceptance. From parade routes with no wheelchair access to ableist attitudes at afterparties, this article explores the barriers disabled LGBTQ+ individuals face—and how we can do better. If Pride is for everyone, then it’s time to prove it.
Living with a chronic illness is extremely difficult but what is it really like on a good day or on a bad day?
I'm thrilled to invite you to a special event that aims to make a significant impact in the lives of those living with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
A Disney-inspired cartoon-style illustration of a woman with long dark brown hair and bright blue eyes lying on a bed, smiling warmly at two black Labradors wearing red collars. One dog has a tag labeled "Alfie," and both appear happy and content

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