Not a fan of November

3 Comments / Disabled blogger, Myalgic Encephalomyelitis / By

I try to keep positive but I have to say that I am not a fan of November. November has always been a very difficult month since Mum passed away and over the years lots have been done as well as said in anger but to me, November will always be a time of loss.

I admit the intro to the this post is a little cryptic but I’m sure my friends and family will know to what I refer. Over the past few years I think I have cried enough tears to fill up the Mersey. November and December always prove just how much I have lost over the years, it’s very difficult to come to terms at times, today just feels like it is crushing me.

Since my illness I have been unable to take part in family Christmas as to get up showered then dressed just takes to much so on Christmas Morning our routine is, we get up early with Becks so she can open her gifts, then of course it is the turn of the FurBaby. Some time during the day Graham and Becks will go to his Mums to spend some time with them, this is when I just sit and cry.

Don’t get me wrong I’m not sat with a tissue all day ready to be set off at any time but knowing that you have 2 people and a dog as the only ones who want to spend Christmas day with you is hard, really hard.

I don’t know what it is about today that is making me feel this way but it’s crushing me.

It really has been a very tough few months and trying to get any sort of regularity to my day is being destroyed by the severity of this illness. I know I am not the best person in the world but I try and any wrongs that I have done in my life I have tried to make amends for. I suppose that is what makes that feeling of absolute solitude on Christmas so much worse.

I write from the heart when I can so that any person who feels like me knows that they are not alone, you are not the only one who feels like that, you are not the only one who suffers in this way.

I am here for you so please reach out all of my contact groups and email addresses are on the contact page. I’m doing all I can to fight all of this negatively and you can too, you are not alone 🥰

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What is Myalgic Encephalomyelitis

According to the NHS Website, Chronic fatigue syndrome (CFS) is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness

For more information please visit https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

People with ME/CFS have fatigue that is very different from just being tired. The fatigue of ME/CFS:

  • Can be severe.
  • Is not a result of unusually difficult activity.
  • Is not relieved by sleep or rest.
  • Was not a problem before becoming ill (not life-long)

Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM).

Sleep problems.

Many but not all people with ME/CFS have other symptoms.

Pain is very common in people with ME/CFS. The type of pain, where it occurs, and how bad it is varies a lot. The pain people with ME/CFS feel is not caused by an injury. The most common types of pain in ME/CFS are:

  • Muscle pain and aches
  • Joint pain without swelling or redness
  • Headaches, either new or worsening

Some people with ME/CFS may also have:

  • Tender lymph nodes in the neck or armpits
  • A sore throat that happens often
  • Digestive issues, like irritable bowel syndrome
  • Chills and night sweats
  • Allergies and sensitivities to foods, odors, chemicals, light, or noise
  • Muscle weakness
  • Shortness of breath
  • Irregular heartbeat
Information is taken from The CDC Website https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms

Myalgic Encephalomyelitis does not have a cure.

Find a Dr or Consultant who listens to you is the first step

It is a manageable condition and depending on the severity of your symptoms the more difficult this can become.

I advise learning to listen to your body and what it is telling you. If you feel tired rest and if you feel pain find a solution to reduce that pain, this could be through pain medication prescribed by your Dr.

I am not saying that finding a Dr who listens or listening to your body is going to be easy as this illness is incredibly complex for some and manageable for others.

Having a Dr who listens to you or reads about the latest drug that sufferers are recommending can take a lot of unnecessary stress and anxiety from the sufferer.

It would be best for me to point you to the above question What is Myalgic Encephalomyelitis? 

Most pages list the illness as ME/CFS or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or sometimes even Systemic exertion intolerance disease (SEID).

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